Children's Hospital of Wisconsin

Michael J. Danduran, Exercise Physiologist & Primary Investigator

Herma Heart Center

Milwaukee, WI

Research project: Near Infrared Spectroscopy (NIRS) as a Marker of Cerebral Perfusion in

Patients with and without Fenestration Following Surgical Fontan Palliation

Funding granted: $17,500

The goal of this investigation is to assess the regional cerebral saturation patterns in

patients with Fontan palliation during exercise with the focus of determining the impact of a

fenestration on cerebral perfusion patterns. This information may significantly impact the

clinical management of these patients and provide an enhanced understanding of the

physiologic coping mechanisms associated with stress allowing for improved participation

guidelines for recreational activities and an enhanced quality of life.

Patient’s who have a heart anatomy that consist of a single ventricle following a Fontan

repair will be asked to participate in this study. The investigators hope to identify how

oxygen gets delivered throughout the body, including the brain, muscles, and vital organs

allowing for an assessment of the heart’s ability to compensate during times of increased

work, which has been shown to decrease in this group of patients.

Exercise is a great tool for imposing stress to the human body. The work associated with

exercise causes the heart to beat faster, the lungs to work harder and the muscles to

contract more forcibly resulting in blood flow patterns that are very different than when a

body is at rest. These changes result in physical fatigue and in some cases exhaustion

leading to a person’s desire to stop what they are doing. The lungs, heart, and muscle work

in a continuous fashion to supply oxygen rich blood to and from the body while continuously

protecting the brain with enough oxygen. In a normal system, supply does not always meet

demand and in patients with imperfect anatomy such as congenital heart disease the

challenge is even greater. Patients with single ventricle anatomy must find ways to

compensate for limitations and the significance of these complications may result in altered

blood flow patterns throughout the body, the most important of which may be altered

oxygen flow to the brain.

The ability to measure the oxygen trends to the body and the brain can easily be made

through a machine called a Near Infrared Spectroscopy. It is non-invasive and it works

through a small 1x2 inch sticker placed on the patient while they walk on the treadmill.

These stickers have a red light that shines into the skin in the shape of a rainbow going

from one side of the sticker to the other. This light is absorbed into the body and using

mathematical formulas tells the investigators how much oxygen is in that tissue. For

parents of children with a congenital heart disease this is similar to the pulse oximeter (ET

light) that is used frequently during routine clinic visits but bigger.

The data that is obtained from the exercise test, in addition to the blood flow patterns

determined using the stickers described above, will provide the investigators with additional

information as to how patients with single ventricle anatomy accomplish and tolerate

stressful situations. More importantly, a focus on how the brain maintains its oxygen levels

would allow us a better understanding of the consequences of the different variations of the

Fontan repair. These differences include the presence of a small hole called a fenestration

that allows for blood that has lower oxygen levels to mix with oxygen rich blood. Finally, the

results of this investigation will provide the clinicians with valuable information that may

benefit the long-term management of patients with a single ventricle.

The Mend a Heart Foundation's mission is to fund promising research that supports our mission of extending and enriching the lives of children born with congenital heart defects.

The Mend a Heart Foundation is a 501(c)(3) tax-exempt charitable organization. The organization has no paid employees; it is run strictly by volunteers.

One hundred percent of proceeds are directed toward initiatives that support our mission.

We sponsor charitable fundraising events throughout the year.     ©2010 Mend A Heart Foundation    Photography by stacy vitallo